My MCL Journey

  This update is a little late, but wanted to share some good news! Since we've discovered and are treating my pneumonia my blood counts have begun to return to normal and recover on their own...looks like the pneumonia WAS the culprit. I have not not had to have a blood transfusion for the past 2 weeks and my hemoglobin is higher than it has been since this all started. That is all, good day!

 Well....unfortunately I ended up back in the hospital again after my 2nd round of chemo was completed. It was a much quicker turn-around this time as I went to the ER and was admitted 2 days after my last chemo session (vs. a week 1/2 later the 1st go-around) . I spent another 7 days in the hospital 8/7 - 8/14 and am back home now. It was fevers again that landed me in the hospital, so very much like the 1st go-around. They did not find anything conclusive the 1st go-around as to why (chalked it up to being neutropenic) . This time however, they found that I had a form of pneumonia, that only people with compromised immune systems get. For the average person they would easily fight off the bacteria. Taking a lot of medicine to kill the pneumonia, but hopefully that will work and won't end up back in the hospital after Round 3! (Aug 31, Sept 1, Sept 2) One perk I had while laying in the hospital was plenty of Facetime and pics of these little cuties...they're what get me throug

Today I started my 2nd round/month of treatment (reminder 6 mos. of treatments) . Since exiting the hospital a week back I have been feeling much better and my blood levels had been staying up. For the 1st time I did not have to have my weekly blood transfusion. I will be getting a transfusion tomorrow just as a precaution b/c the chemo could cause it to decrease. Additionally, after my 3rd day/final treatment I'll be getting a medicine (patch) so that hopefully my white blood cells won't dip down too low again (and end up back in the hospital) - fingers crossed! I'm also now focused on gaining back weight...throughout all of this I've lost between 30-40 lbs...need to gain 15-25 back so trying to eat constantly. As the treatment is working / the cancer is dying that should also help and I should stabilize. Hope everyone is doing well!!! 2nd Day of School! Thanks for the picture mom (Maneesha) :)